This page displays the latest external news about hypoparathyroidism
- Global Genes, Diversity Coalition Team Up to Advance Health Equityby Shayna Korol on October 18, 2021
Global Genes has partnered with the Rare Disease Diversity Coalition (RDDC) to advance health equity for rare disease patients and caregivers in underrepresented communities of color. “For rare disease patients, there are many challenges — and for people of color with a rare disease, these challenges are compounded by systemic barriers to timely diagnosis and The post Global Genes, Diversity Coalition Team Up to Advance Health Equity appeared first on Hypoparathyroidism News.
- Rare Disease Diversity Coalition Awards $600K to Combat Disparitiesby Shayna Korol on October 11, 2021
The Rare Disease Diversity Coalition (RDDC) awarded $600,000 in grants to ease the disparities faced by rare disease patients of color. These Impact Rare Disease Solution grants will go five RDDC steering committee working groups, which aim to identify problems for rare disease communities and advocate for solutions. The five RDDC groups are: Delays in diagnosis The post Rare Disease Diversity Coalition Awards $600K to Combat Disparities appeared first on Hypoparathyroidism News.
- AZP-3601 Safely Raises Blood Calcium Levels in Trial in Healthy Adultsby Marisa Wexler MS on October 4, 2021
AZP-3601, an investigational treatment for chronic hypoparathyroidism, was able to safely increase blood calcium levels in healthy volunteers in a Phase 1 clinical trial, top-line data show. “We are pleased with these clinical trial results for AZP-3601 … as they support a potential therapeutic profile that we believe can address the multiple clinical needs of patients with The post AZP-3601 Safely Raises Blood Calcium Levels in Trial in Healthy Adults appeared first on Hypoparathyroidism News.
- New Data-sharing Program Aims to Speed Innovation in Rare Diseasesby Shayna Korol on September 29, 2021
A new U.S. initiative called Rare Disease Cures Accelerator–Data and Analytics Platform — dubbed RDCA–DAP — aims to accelerate treatment innovation across rare diseases by sharing existing patient data and promoting the standardization of new data collection. Launched during a virtual workshop in September, the U.S. Food and Drug Administration (FDA)-funded initiative includes rare disease The post New Data-sharing Program Aims to Speed Innovation in Rare Diseases appeared first on Hypoparathyroidism News.
- PGA Procedure Tied to Higher Risk of Immediate Hypoparathyroidismby Marta Figueiredo PhD on September 27, 2021
A routine procedure called PGA — for parathyroid gland autotransplantation — often done following surgery to remove the thyroid gland, is associated with a higher risk of immediate hypoparathyroidism, a study shows. However, PGA did not raise the risk of permanent hypoparathyroidism, or that lasting more than six months. And, in turn, this risk was The post PGA Procedure Tied to Higher Risk of Immediate Hypoparathyroidism appeared first on Hypoparathyroidism News.
- Uplifting Athletes Tackles Funding for Rare Disease Research, Awarenessby Hawken Miller on September 21, 2021
Football and science seem to be disparate fields of play at first glance, but the nonprofit Uplifting Athletes is finding common ground by leveraging the popularity of college gridiron games to fund research for rare diseases. Its nearly two dozen chapters — representing college football teams across the nation — are organizing fundraisers to help The post Uplifting Athletes Tackles Funding for Rare Disease Research, Awareness appeared first on Hypoparathyroidism News.