Living with Hypoparathyroidism

We recognize the challenges of living with hypoparathyroidism and have put this page together to help.

Whether you are feeling great or are struggling, whether you have been managing this on your own or are currently connected with community, we believe that we have something unique to offer that you will appreciate.

HypoPara Support & Advocacy is new, but we are not new to hypopara. As a patient-led organization, we have board leaders who have lived with hypopara for many years, with our most seasoned at 43 years since diagnosis. Our founder was diagnosed ten years ago. We have experienced the ups and downs, emergency department visits, IV calcium, Natpara use and recall, and so much more.

But, our organization isn’t just about sharing our experience managing our condition. We recognize that life with hypoparathyroidism involves living, and that extends beyond our rare disease.

As we continue to grow, so too will our evolving content, designed specifically to educate and provide the tools and skills necessary to support you in whatever your needs might be. And when you need us the most, we’ll be there for you too.

To help you get started exploring our site, we’ve collected some pages that many HypoPara community members have expressed interest in. We even have a provider search tool that many HypoPara community members helped put together. After reviewing what we have to offer, sign up for our newsletter below to stay informed about upcoming programs and events.  And, if you feel inspired to help, explore our get involved page to learn about what you can do to support our work and our community.