We believe that collective voices have much more power than any single one. We also believe that it is important not only to advocate for hypoparathyroidism needs but also for legislation that impacts rare diseases in general.
There are over 7,000 diseases that affect 25-30 million Americans, and 90% do not have an approved FDA treatment. As Natpara’s recall has highlighted within our own community, it is clear that even when there is an FDA-approved treatment, it can be a precarious situation that can have devastating outcomes.
All rare disease communities deserve better – the HypoPara community deserves better.
On this page, you will find tools to support you in joining us by lifting your voice to raise awareness about hypoparathyroidism and the needs of so many rare disease communities.
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